I'm writing this around midnight. All the windows are open. I smell bluebells and mown grass. In the ravine the tree frogs are creaking. It's a beautiful evening. Tomorrow, though, it will rain.
Still, today I spent an hour sitting on the deck in the sun--reading a paper about fampridine (aka 4-aminopyridine aka 4-AP) published recently in The Lancet. (Sadly, you need a subscription to read the whole article, but here's the abstract.)
It's an interesting lesson in capitalism. 4-AP has been around in generic form for years. If (when, assuming I can clear up a few scary questions about alcohol use and seizures) I persuade my neurologist to prescribe it, I'll get the local pharmacy to compound it for me. It will cost about $50 a month. Fampridine-SR, on the other hand, will probably sell for about $1,000 a month.
But, hey, that's a detail for dreary daylight. Right now the treefrogs are singing...
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I imagine that you have investigated many drugs and remedies in your lifetime. I hope that this is one that works for you.
ReplyDeleteGood luck on your quest. Isn't it interesting that good luck often starts with good research?
ReplyDeleteWe now have some hints of green buds on the trees in Maine. I'm glad you get to enjoy the frogs every night--they're such a sweet sound!
ReplyDeleteNicola, you asked me to give y'all an update on the equal marriage hearing last week. I finally got my blog post written, with links to my Flickr site.
What.An.Event.
Janine, you are a hero, and a hero who can write at that. Thankyou for the heartening news from Maine.
ReplyDeleteJanine, thank you. I second Barbara: heartening.
ReplyDeleteWe're SO close.
ReplyDeleteI quoted from your post today. You are from Seattle! A writer! Small world. My readers are curious about the new MS "walk faster drug."
ReplyDeleteDiane, welcome, thanks for dropping by. Yes, Seattle.
ReplyDeleteI couldn't find your quote. I'd love to read it. (Please send me a link.)
Ampyra. Ha. Bird poison.